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Privacy Statement

Effective Date: January 1, 2025

Sickle Cell Warriors of Wisconsin (“SCWWI,” “we,” “our,” or “us”) values your privacy and is committed to protecting the personal information you share with us. This Privacy Statement explains how we collect, use, disclose, and safeguard your information when you visit www.sicklecellmke.org (“Site”) or interact with us by email at info@sicklecellmke.org.

1. Information We Collect

We collect information in three ways:

CategoryExamplesSource

Information you provideName, email address, mailing address, phone number, survey responses, event registrations, donation detailsForms, RSVPs, surveys, email, donations

Information collected automaticallyIP address, browser type, device identifiers, pages visited, referring/exit pages, time spent, cookiesCookies, log files, analytics tools

Information from third partiesPayment verification, event‑ticketing data, social‑media interactionsPayment processors, social platforms, plugin services

2. How We Use Your Information

We use your data to:

1. Process event registrations, donations, and resource requests
2. Send confirmations, newsletters, and program updates you’ve opted into
3. Improve our Site’s content, usability, and security
4. Conduct surveys and community‑needs assessments
5. Comply with legal and regulatory obligations

3. Sharing & Disclosure

We do not sell or rent your personal information. We share it only:

  • With trusted service providers who perform services on our behalf (e.g., payment processors, email newsletter platforms) and who agree to keep it confidential

  • When required by law, court order, or to protect the rights and safety of SCWWI, our users, or others

  • With your explicit consent (e.g., to spotlight a personal story)

4. Cookies & Tracking

The Site uses cookies and similar technologies to:

  • Remember your preferences (e.g., language, event filters)

  • Collect anonymous analytics about site traffic and engagement

  • Enable embedded content such as event-registration widgets

You can disable cookies through your browser settings, but some features may not function properly.

5. Data Security

We implement administrative, technical, and physical safeguards designed to protect your information against unauthorized access, alteration, or disclosure. While no method is 100 % secure, we continually review and enhance our security practices.

6. Your Choices & Rights

  • Opt‑out: You may unsubscribe from newsletters at any time by clicking the link in each email.

  • Access & correction: Email info@sicklecellmke.org to review, update, or delete your personal data.

  • Do‑Not‑Track signals: The Site currently does not respond to browser DNT signals.

7. Children’s Privacy

Our Site and programs are primarily directed at individuals aged 13 and older. We do not knowingly collect personal data from children under 13 without verifiable parental consent.

8. Links to Other Sites

This Site may contain links to third‑party websites. We are not responsible for their content or privacy practices. Please review those sites’ privacy policies before providing any information.

9. Updates to This Statement

We may update this Privacy Statement from time to time. Changes will be posted on this page with a revised “Effective Date.” Continued use of the Site after changes constitutes acceptance of the updated terms.

10. Contact Us

For questions, concerns, or requests regarding your privacy, please contact:

Email: info@sicklecellmke.org
Mail: Sickle Cell Warriors of Wisconsin
           2107 N Dr. Martin Luther King Drive, Milwaukee WI 53212

Thank you for trusting Sickle Cell Warriors of Wisconsin with your information. We are committed to protecting your privacy and empowering our community.

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